My doctors failed me!!!
But the story doesn't end there. Luckily, I went to a chat forum and asked
the following question: "Please will you describe Fibromyalgia for me?"
But the story doesn't end there. Luckily, I went to a chat forum and asked
the following question: "Please will you describe Fibromyalgia for me?"
- Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted 11/5/2004 7:14 PM (GMT -7)
My main problem is that my muscles contracted in a really painful way.
Then next day my muscles around my abdomen were SO tight, they began
to bend me over.
It's been a month and my voice is stronger. I think it was so whispy for
awhile because of how tight my diaphragm muscles were.
I have some severe pain in my right thigh which has had neuropathy for
awhile. That pain is stinging, whereas it used to be like a really bad sunburn.
- I felt like the doctor was just putting me off when he said I had
fibromyalgia. The nurse asked me how long I'd been fat, and how did I
do things before, as if I were shirking things.
This came on like FAST. It hit, and then it hasn't gone away.
The day before it hit, I was working in the garden building a stone wall. Now
I haven't been outside except on a guerney on the way to the ambulance...
Is this how you've experienced FM????
And if not, what's it like for you???
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- simple8127
New Member
Date Joined Oct 2004
Total Posts : 2
Posted 11/5/2004 10:53 PM (GMT -7)
I was diagnosed w/ fibromyalgia about one year ago. I had gone to the
doctor because I for about 6 months could not push down on my hands
w/out pain. At the time I figured the rheumatologist just told me I had
fibromyalgia because he couldn't come up w/ a definate diagnoses. However
this year, one night at work I felt like I could not walk w/out extreme effort.
It felt like every muscle in my body had had a severe workout. This
continued for about 3 weeks and I could not work. I have since gone back to
work but I have to take off about every few days if I do any extra activity.
And forget about housework. I can't even run the sweeper over my floors
w/out being unable to move after that for many hours. I also have to sleep at
least 12 hours a day.
- Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted 11/5/2004 11:30 PM (GMT -7)
Hi Simple.
Thank you so much for explaining to me.
I don't quite understand, though. When you say your muscles feel like they
had a severe workout... do your abdominal muscles ever feel like they are
going to roll up? It is the most odd feeling.
Oh, I know... is it all your muscles?
Mine is just my abdominal, side, back, and diaphragm muscles. My legs and
arms are fine. My neck gets tight but that's probably stress.
Has your voice ever sounded really weak and wispy from this??
At first I couldn't make a cup of coffee in the morning without going back to
bed because of how tight my muscles got. It would take me hours to get a
cup of coffee. And I was eating saltines because they were not too heavy.
Mostly everything was too heavy for me. Like my Brita water pitcher: with
less than an inch of water in it, it began to pull really uncomfortably on my
muscles.
Luckily I get community meals now, that are brought to my home.
And I can lift the Brita pitcher when it is full, now.
But if I'm up a total of ten minutes in the morning, that's pretty much it. I
have to totally recharge.
I don't sleep any more than I used to. But I have to stay in bed because
sitting on a chair makes my muscles clamp really tight... I have my computer
in bed with me... talk about an unnatural love affair... : )
If you have the time to clarify any more, I'd really appreciate it.
Thank you soooo much.
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Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted 11/6/2004 1:51 AM (GMT -7)
Hi ampsy... no it's not like pinched nerves at all. I've had that before.
- What I really think it is, is tetanus.
But the doctor said that was rare so I couldn't have it.
I think he said it was fibromyalgia because ...
I don't know, but I didn't feel like he took it seriously. So when I read the
post where the doctor wouldn't give her pain medication, I thought about the
doctor I saw. I mean, I felt like he thought I was acting to get out of doing
things.
- The one thing that's good about learning about Fibro, is that maybe
B12 helps. I think one reason the doctor didn't think I could have
tetanus, is that he didn't really see the contractions, and although I was
really sick, I wasn't that close to dying and I guess tetanus kills a lot of
the people who get it. I think because I have more B12 in my system
than most 60 year olds that I was lucky.
Thank you so much for writing...
The reason I mentioned the wall, was just because the nurse was sounding
like I'm lazy and if I wanted to I wouldn't feel bad... I was loving building
the wall. The muscle contraction the next day was just sudden, and after that
my muscles were tight...
Does Ibuprofen help with fibro????
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- Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted 11/6/2004 1:55 AM (GMT -7)
ampsy, what happened to your post????
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ampsy
Veteran Member
Date Joined Feb 2004
Total Posts : 763
Posted 11/6/2004 3:00 AM (GMT -7)
hi, sorry about that, 'BRAIN FOG!!!pressed the wrong button!!!
my father had P. anemia & that was leukemia!! he's dead now after
numerous blood transfusions {12 mths} he lasted after dx..
I still say or think you may have pinched spinal nerves {a very painful
condition} worth getting it checked out, doesn't sound like fms to me, I've
had it 30 yrs, take care, wendy xxx
--------------------------------------------------------------------------------
"QUALITY VS QUANTITY, OUR CHOICE"
WENDY AUSTRALIA
jk
Registered Member
Date Joined Oct 2004
Total Posts : 146
Posted 11/6/2004 6:07 AM (GMT -7)
Hi nice to meet you Consider, although not under these circumstances
though. Sorry you are feeling so badly. I have not been dx with anything yet,
but i do have an appt with a rhematologist in a week and a half. And this I
had to drag out of my doc, so I understand your frustration with your doc.
But from what I have read and experienced, I must agree with Wendy that
what you ae describing does not sound like fms. Youe doc is a general
practioner? You need to be seen by a rheumatologist or a doctor that
specialzies a little more in fms than just a reg MD. Fms seems to come more
over time then a sudden attack like you described. I think you should
demand a referral, or if your insurance allows, go ahead and make an appt
with a rheumatologist, and if he does not think its fms he can probably steer
you in the right direction, he will probably take blood tests etc. It sound like
you are not getting any help form the doc you have now. That really scares
me. You mayy have to seek otu a new MD who will take you serioulsy, this
is your well being here, and if you had the proper care, I think your quality
of life may improve drastically, please find another doctor who will help you.
ask many questions here, the ladie here are very kind, and knowledgeable
too, they can give you many tips and advice. Please keep us posted, take
care...love...Sheryl
--------------------------------------------------------------------------------
***Take Care.....Sheryl***
Erma Bombeck said...I May Not Always Understand You, But I'm Always
Willing To Listen.
Erma Bombeck said...If You Can't Stand the Heat.......Turn Off the Stove..
- Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted 11/6/2004 8:01 AM (GMT -7)
ampsy said...
hi, sorry about that, 'BRAIN FOG!!!pressed the wrong button!!!
my father had P. anemia & that was leukemia!! he's dead now after
numerous blood transfusions {12 mths} he lasted after dx.. I still say or
think you may have pinched spinal nerves {a very painful condition} worth
getting it checked out, doesn't sound like fms to me, I've
had it 30 yrs, take care, wendy xxx
Hi ampsy,
I am so happy to find your message this morning. Yesterday I'd thought
maybe you found me irritating in the end, and had wished you hadn't
answered. So this is great. thank you.
I'm not aware that pernicious anemia is leukemia. I'm sorry to hear about
your father dying. It sounds like you had a very hard year. Did the stress
make your illness worse? It seems like it would. I hope you're feeling better,
or that you will soon feel better.
- My pain isn't like a pinched nerve, though. This is like, for instance the
woman from Kitchen Angels came over to interview me, and she was
really nice. I explained to her that the ER doctor had said I couldn't
have tetanus because it is rare. She was only here a half hour. But
during that short time, with me lying in bed and never once getting up
because I'd left the door open so she could just come in, my muscles
got tighter and tighter till they were just like a band around my middle
and one that was making it hard to breathe.
This last week I've had major neuropathy pain, meaning that it's in the same
place as I've had neuropathy pain before: my right thigh. Only this is an
extremely sharp pain, whereas before the pain was like a bad, bad sunburn.
Yesterday I decided to try two B12 shots instead of one. One in the a.m.
and one in the p.m. and I gave them to myself in my right thigh even though
it feels so weirdly numb.
This morning the pain didn't wake me, but I forgot to take melatonin, so I
only got four hours of sleep for that reason.
If your dad had p.a., then from what I understand about it, there's a good
chance you inherited it, or a predisposition to it. Newer research seems to be
saying that something called B12 malabsorption illness precedes p.a. I guess
the idea is that p.a. is what happens after a body has been very low on B12
for a pretty long time. So, if you have lines on your fingernails (that's my old
standby for a folk-look at how I'm doing) you might want to get some
sublingual (methylcobalamin) B12 and try that. In my experience B12 makes
a lot of difference in reducing how much pain I feel. It's pretty cheap at
Walgreen's.
thank you again for writing to me... I REALLY appreciate it.
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Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted 11/6/2004 8:07 AM (GMT -7)
simple8127 said...
I was diagnosed w/ fibromyalgia about one year ago. I had gone to the
doctor because I for about 6 months could not push down on my hands
w/out pain. At the time I figured the rheumatologist just told me I had
fibromyalgia because he couldn't come up w/ a definate diagnoses.
However this year, one night at work I felt like I could not walk w/out
extreme effort. It felt like every muscle in my body had had a severe
workout. This continued for about 3 weeks and I could not work. I have
since gone back to work but I have to take off about every few days if I do
any extra activity. And forget about housework. I can't even run the
sweeper over my floors w/out being unable to move after that for many
hours. I also have to sleep at least 12 hours a day.
Hi Simple,
I woke up this morning thinking about you and what you wrote. Not being
able to push down on your hands without pain is a pretty clear image. And 6
months makes it pretty clear that it wasn't an overnight thing.
I forget how rhumatism and arthritis are different/similar... are they joint
oriented??? Are you saying that your muscle pain is also related to your
joints?
Thank you so much for writing to me. It has helped me begin to understand
a little more.
--------------------------------------------------------------------------------
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Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted 11/6/2004 8:25 AM (GMT -7)
jk said...
Hi nice to meet you Consider, although not under these circumstances
though. Sorry you are feeling so badly. I have not been dx with anything
yet, but i do have an appt with a rhematologist in a week and a half. And
this I had to drag out of my doc, so I understand your frustration with your
doc. But from what I have read and experienced, I must agree with Wendy
that what you ae describing does not sound like fms. Youe doc is a general
practioner? You need to be seen by a rheumatologist or a doctor that
specialzies a little more in fms than just a reg MD. Fms seems to come
more over time then a sudden attack like you described. I think you should
demand a referral, or if your insurance allows, go ahead and make an appt
with a rheumatologist, and if he does not think its fms he can probably
steer you in the right direction, he will probably take blood tests etc. It
sound like you are not getting any help form the doc you have now. That
really scares me. You mayy have to seek otu a new MD who will take you
serioulsy, this is your well being here, and if you had the proper care, I
think your quality of life may improve drastically, please find another
doctor who will help you. ask many questions here, the ladie here are very
kind, and knowledgeable too, they can give you many tips
and advice. Please keep us posted, take care...love...Sheryl
Hi Sheryl,
Nice to meet you, too. (also, not under these circumstances)
Hmm... this post is looking very different... not sure why...
Yes, you got it!!!! major frustration (to put it mildly) with my doc.
- My problem was that I'm major poor right now due to a privy pit my
condo was built over. So doctors just would not see me because I
didn't have any money. They said I had to go to the ER because the
ER has to see people who don't have money...
A major difference between what I have and fibromyalgia, is that I'm pretty
sure that while mine is major serious, just like yours, mine is going to go
away. Not quickly, but in the end if I just don't have a relapse.
Sharing tips and advice is SOOOO helpful. That's why I did my web pages
on B12, because my doctors just were no help and it's such a simple thing
and it's such a common problem (according to the research... it's not just me
saying that.)
I was thinking this morning about a woman who wrote me last year after she
found my web site. I think she said she has fibromyalgia and that B12 had
helped her and she just wanted to share that with me. But then she told me
about www.dadamo.com which is a web site about eating specific things that
work well for whatever your specific blood type is. She swears by the diet.
So I tried it and I was amazed. I'm A blood type, so for me it said that kale
was good, and cabbage, not good. I used to eat a lot of cabbage because I'd
read it was good for warding off colon cancer. So I switched. And it said
brown rice was good for me (which I'd also had read was good for people
with pernicious anemia) and in the first week I lost something like 7 pounds
even though I was eating tons of food. It was like there'd been a swelling in
my body, and that swelling began to go away. Later she wrote me that she'd
lost a lot of weight, I mean several sizes. She wrote me after she'd been
shopping and was so happy to be down to some tiny size. The thing about
the diet that made the most difference to me was that it got rid of the
constant diarhhea I'd had. Now when I eat the food they bring me (and it is
totally dynamite food) I have the diarhhea again, but hey, it's just sooo great
to have food. Before, after I got whatever it is I have, I couldn't stand up
long enough to make anything and I was relying on saltines...
Okay, I'm going on a bit... sorry.
Thank you a lot for writing. I really appreciate it.
Being alone in things like this is the WORST.
You're great!!!! thanks for your kind words!!!!!
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US Dawn
Registered Member
Date Joined Jul 2004
Total Posts : 58
Posted 11/6/2004 1:28 PM (GMT -7)
Consider~
FMS is a disease that emits pain in all 4 quadrants of your body (upper,
lower, left, and right sides). What you have doesn't sound like FMS at all.
You're only naming one area. Besides that, you'd have to go through a
battery of testing, where they would eliminate various other illnesses, like
Lupus or a pinched nerve - then have the 18 point test done. That's where
they see how many of these specific points of your body are affected w/
pain. If I were you, I'd get another opinion. I wouldn't even mention the
previous diagnosis, so that you aren't just chucked into that diagnosis file
incorrectly.
Best of luck!
Dawn
Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted 11/6/2004 5:59 PM (GMT -7)
Dawn, that's very clear information. Thank you so much!!!
I kept wondering if something like the quadarant thing didn't have to be true.
The quadrants you mention include arms and legs, right???
- I don't think the doctor was even trying to help me.
- The initial pain of the contractions was so bad that I was screaming.
Dr. Raboff had me have a psychological evaluation before he did
anything, besides a pain killer in the IV. I think he only took me even
remotely seriously after the whole battery of illegal drug tests he had
done on me came back negative.
I told him that I'd accidentally jammed a darning needle into my toe and I
didn't realize a part had broken off in my toe.
- He asked me some question that sounded as if he thought I had
jammed the needle into my toe on purpose in an ineffective attempt to
kill myself with tetanus.
- I mean he was really way off the deep end in how he seemed to be
interpretting me. I think the major pain and the fact that I have some
brain damage made it really hard for me to be clear, most of my energy
was going into combating pain.
- The second time I was in the ER, a couple weeks later, the doctor
seemed to be being guided by what Dr. Raboff had decided. So the
second doctor just said, "Fibromyalgia" the way someone might say,
"common cold." He didn't sound serious. He sounded like it was his
suggestion for something I could get interested in and talk about, sort of
as if my health weren't a real concern, but a hobby. Hypochondriac.
They make me really angry.
Earlier today, thinking about what people here had written to me, I realized
that the feeling I have in my muscles is as if they are hardening, solidifying,
seizing up. Because they tighten and draw me over as they do, it's very scary
and I hurry back to bed so that I don't end up on the floor unable to move...
thank you for writing.
Can I still stay here for a bit???? I've learned so much from you guys. I am
so grateful to you for your help.
: )
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Post Edited (Consider) : 11/6/2004 5:02:31 PM (GMT-7)
- Jeannie143
Registered Member
Date Joined Apr 2004
Total Posts : 135
Posted Yesterday 12:25 AM (GMT -7)
I've been reading your posts and wondering, did the doctors give you a
tetanus shot or run any kind of a tetanus titer or test? You're right that it
does sound like tetanus... Is the darning needle still in your toe? Has anyone
x-rayed it? You may want to go to a clinic or redi-care where you'll get a
different opinon... If it's tetanus and the ER overlooked it then someone
needs to do some remedial reading (I'm talking about the doctors, not the
patient). It's very common, not rare. That's why people have to get booster
shots for it about every 5 to 10 years. (Duh!)
Anyway, hope you get some help soon.
-------------------------------------------------------------------------------
______
(((((()))
_IiiiiiiiI
@@@@
@^,^@ ~ Jeannie
ampsy
Veteran Member
Date Joined Feb 2004
Total Posts : 763
Posted Yesterday 1:25 AM (GMT -7)
hi, Con, I don't think it's tetanus either! that comes out pretty quickly &
affects the jaw muscles first, you said you were in a few car accidents & had
a few whip-lash's, I still think it's pinched nerve's in you neck & back, the
spine is very complex & affects the nerves pain in so many strange parts of
the body, it seems to radiate around & can radiate around all your stomach
& make it swell up, gee us humans a strange critter's!!!
as was sugested by Dawn get another opinion.................
--------------------------------------------------------------------------------
"QUALITY VS QUANTITY, OUR CHOICE"
WENDY AUSTRALIA
Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted Yesterday 12:43 PM (GMT -7)
Jeannie143 said...
I've been reading your posts and wondering, did the doctors give you a
tetanus shot or run any kind of a tetanus titer or test? You're right that it
does sound like tetanus... Is the darning needle still in your toe? Has
anyone x-rayed it? You may want to go to a clinic or redi-care where you'll
get a different opinon... If it's tetanus and the ER overlooked it then
someone needs to do some remedial reading (I'm talking about the doctors,
not the patient).
It's very common, not rare. That's why people have to get
booster shots for it about every 5 to 10 years. (Duh!)
Anyway, hope you get some help soon.
Hi Jeannie,
I got the broken quarter inch of needle out about two days later. When I got
a red line under my toe nail, I soaked my foot for several hours a day in
Epsom salts, ate bottles of Vitamin C, and had extra B12 shots.
When the red lines faded a bit, I felt relieved and forgot about the whole
thing until I got the major contraction in my back muscles several weeks
later.
- The doctors pretty much concentrated on giving me tests for illegal
drugs. I think that was because I'd been screaming from the contraction
pain and was not in a friendly happy mood.
They gave me a tetanus shot and some antibiotic. I don't think they
gave me enough antibiotic because they said I couldn't have tetanus
because it's rare. One nurse said I couldn't have it because it comes
from the soil. That's when I began to realize that because I grow my
own veg, I'd been working in my garden with sandals on, before I
came in to sew...
I'm so sick now that I can barely get out of bed... well actually I've been
better the last few days and I can be up for about ten minutes before my
muscles feel as if they are turning to concrete.
If I hadn't come to this forum, I wouldn't have recognized the difference
between the uncomfortable somewhat hurting feeling of my muscles seizing
up, vs. pain... you guys seem to have genuine pain a lot of the time. If I try
to ignore my muscles when they tighten, then I get substantial pain, that feels
like an apendicitis attack, but if I just shuffle as fast as I can to bed, then
there's no real intense pain to speak of.
I am so grateful to you for your help.
I'm not quite sure what to do because of how incapacitated I am.
-------------------------------------------------------------------------------
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Your fingernails reflect your health --
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Post Edited (Consider) : 11/7/2004 11:46:45 AM (GMT-7)
- Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted Yesterday 12:53 PM (GMT -7)
ampsy said...
hi, Con, I don't think it's tetanus either! that comes out pretty quickly &
affects the jaw muscles first, you said you were in a few car accidents &
had a few whip-lash's, I still think it's pinched nerve's in you neck & back,
the spine is very complex & affects the nerves pain in so many strange
parts of the body, it seems to radiate around & can radiate around all your
stomach & make it swell up, gee us humans a strange critter's!!!
as was sugested by Dawn get another opinion.................
Hi ampsy,
My car accidents were well over ten years ago. I've had pinched nerves
several times, and this doesn't even remotely feel like that.
Because of how much stress I'm under, I don't really pay attention when my
neck is stiff, or my jaw muscles.
I think the fact I have so much more B12 than other older people (speaking
on an average) that the disease couldn't work as fast.
In fact, I've begun to think that when people get it and 4 out of 10 untreated
people survive, that those people are ones who naturally have more B12 in
their systems. Generally speaking, 4 out of 10 people have sufficient B12 in
their systems....
What Jeannie said about getting a tetanus shot every ten years is very
important. I hadn't had one for over 30 years.
--------------------------------------------------------------------------------
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JulieJR
Veteran Member
Date Joined Feb 2004
Total Posts : 313
Posted Yesterday 10:43 PM (GMT -7)
First of all, Wendy, Annie and I had a fine chat. I called her right after I got
your card. Her computer should be up before long and we should have our
girl back.
Consider, When you said red lines, that said red flags up for me. Are the
COMPLETLY gone.
I got those red streaks running up my legs from the tiniest of cuts when I
was 12. Before the docs were thru messing around and got down to doing
some doctoring, I almost lost both legst to blood-poisoning. You might try
having a complete blood work up, if you haven't already.
If you have, I'd go to the next citys' ER and not tell them a thing about your
previous dx. See what they come up with.
Something is definetly wrong with how your case is being handled.
Good luck to you, my friend.
Julie
--------------------------------------------------------------------------------
CHASING FULFILLMENT IN LIFE CAN SEEM
JUST AS IMPOSSIBLE AS TAMING A
TORNADO
-unknown
Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted Today 1:21 AM (GMT -7)
JulieJR said...
First of all, Wendy, Annie and I had a fine chat. I called her right after I
got your card. Her computer should be up before long and we should have
our girl back.
Consider, When you said red lines, that said red flags up for me. Are the
COMPLETLY gone.
I got those red streaks running up my legs from the tiniest of cuts when I
was 12. Before the docs were thru messing around and got down to doing
some doctoring, I almost lost both legst to blood-poisoning. You might try
having a complete blood work up, if you haven't already.
If you have, I'd go to the next citys' ER and not tell them a thing about your
previous dx. See what they come up with.
Something is definetly wrong with how your case is being handled.
Good luck to you, my friend.
Julie
You guys had a chat???
Okay, so I totally agree that my case isn't being handled properly.
and I am so glad to hear that the red lines don't sound totally unfamiliar to
you. I don't think I can drive to the next city, because of how sick I still am.
And I think you are right, that the thing to do would be just to sort of start
over and not mention the past.
The lines weren't completely gone when I stopped soaking my foot in
Epsom salts way back in August. When they got fainter, I thought well,
sometimes when I have a scratch it stays red. So I stopped soaking my foot
and forgot about it.
Then this whole thing started at the end of September. When I had the
antibiotics, the lines got fainter, but I ran out of the antibiotics and I couldn't
get a doctor to give me anymore, and the lines got brighter again. I asked my
caregiver to find a big, wide crock pot, and she did. But it took two weeks to
get the Epsom salts and the pot because I only have her 3 hours a week.
Since I got the crock pot, I can keep the water heated. It was way too heavy
for me to move the water in any reasonably sized container, but now I'm
stronger and I can ladle out a lot in a pitcher, and put fresh hot water in. So,
the lines are fainter after 2 or three hours of soaking. But in the morning,
they are no longer so faint.
In the morning, my toe feels tender, too. which is really odd because I can't
feel my kitty lick it, when she does. So I think the tenderness must have
something to do with something deep that's wrong.
I think that if the Epsom salts gets rid of the underlying infection...then I
might get a lot better. I think I got better when I had the antibiotic because of
that.
But, there's no swelling. Did you have swelling when you were little and had
the red line on your leg? Also, the lines don't go up my leg, they are just ever
so tidy on my toe, under the nail.
What was it in the end that saved your leg?????
Thank you a lot for all the thought you put into this. I appreciate it. I'm
feeling more hopeful.
--------------------------------------------------------------------------------
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Your fingernails reflect your health --
Learn what warning signs to look for --
Karen Kline
Post Edited (Consider) : 11/8/2004 12:27:37 AM (GMT-7)
jk
Registered Member
Date Joined Oct 2004
Total Posts : 146
Posted Today 11:25 AM (GMT -7)
Hi Consider I went to the store today and bought the b-12 vitamin
sublinguils, so far so good, not sick and I actually feel more energetic too.
Oh I think in the above post by Julie she is speaking to wendy and letting her
knw she spoke with a lady named Annie who is a very strong member of
this forum here. ans then she goes on to speak to you. You seemed confused
(lol) ANyways I will keep you posted about b-12 take care...
--------------------------------------------------------------------------------
***Take Care.....Sheryl***
Erma Bombeck said...I May Not Always Understand You, But I'm Always
Willing To Listen.
Erma Bombeck said...If You Can't Stand the Heat.......Turn Off the Stove..
ginny
Veteran Member
Date Joined Feb 2003
Total Posts : 334
Posted Today 11:38 AM (GMT -7)
Hi Consider,
I just read your last post, and when you described the little red line under
your toe nail, and huge red flag went up!!
I'm a regular on the lupus forum, I also have Fibro. the red lines in your
nails, (and you may find them in your finger nails as well), are called Splinter
Hemmorhages. It is an indication that you have vasculitis or inflammation of
the blood vessels. You need to show these to your doctor. I'm going to do a
little investigating aon your symptoms. they don't sound like Fibro to me
either. For me, fibro pain is a big old body ache, all over. If I get poked or
bump into something, I am in extreme pain. It's like a big bruise all over my
body. I'll get back to you shortly, now for some investigating.....
ginny
--------------------------------------------------------------------------------
If God brings you to it, He will bring you through it.
Happy moments, praise God.
Difficult moments, seek God.
Quiet moments, worship God.
Painful moments, trust God.
Every moment, thank God.
ginny
Veteran Member
Date Joined Feb 2003
Total Posts : 334
Posted Today 11:55 AM (GMT -7)
Hi consider,
I've gone on the web and typed in "stiff or hard abdominal muscles". I get a
pile of different diseases and conditions. So it's really important to see a
different doctor. I don't think your current doc is handling your situation with
the care you need.
If you're curious, type the same words into your search engine and see what
comes up. Maybe something will really hit home for you. Are you having
any other symptoms at all? anything abnormal? Sure wish I could help you
more, we all wish for that!
Keep us posted!!
Ginny
--------------------------------------------------------------------------------
If God brings you to it, He will bring you through it.
Happy moments, praise God.
Difficult moments, seek God.
Quiet moments, worship God.
Painful moments, trust God.
Every moment, thank God.
Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted Today 12:46 PM (GMT -7)
jk said...
Hi Consider I went to the store today and bought the b-12 vitamin
sublinguils, so far so good, not sick and I actually feel more energetic too.
Oh I think in the above post by Julie she is speaking to wendy and letting
her knw she spoke with a lady named Annie who is a very strong member
of this forum here. ans then she goes on to speak to you. You seemed
confused(lol) ANyways I will keep you posted about b-12 take care...
Hi Sheryl, I am so happy to hear that you went to the store and got B12
sublingual... and best of all, that it didn't make you feel sick when you used
it. I am just so happy that I actually am getting tears in my eyes. B12 has
made so much difference in my life... I am so happy to hear someone else
having a good experience with it.
That was really nice of you to explain the message. I was confused by Julie's
message. It's funny how there are some things it's really good to try hard at,
and others that we should just let slip by because they aren't really for us
anyway.
- The doctor may not have helped me directly, but when he said to
research fibromyalgia and that took me to this forum, it was really
really good.
- thank you all so much.
Thank you Sheryl for writing : ) I appreciate it.
Yes, please keep me posted on your experience with B12
that will be so good
and I'm keen to hear. : )
--------------------------------------------------------------------------------
www.health-boundaries-bite.com/Fingernails.html
Your fingernails reflect your health --
Learn what warning signs to look for --
Karen Kline
Post Edited (Consider) : 11/8/2004 11:49:02 AM (GMT-7)
- jk
Registered Member
Date Joined Oct 2004
Total Posts : 146
Posted Today 12:54 PM (GMT -7)
Hi Consider, thanks again for lettin me know about the b-12 sublinguals, I
spoke with the pharmacist there and he agreed with what you told me, So I
hope it continues to go good with it. Please do try what Ginny suggested and
type in your search engine the diffenet symptoms you have and see what
comes up an dif any of it applies to what you are feeling. I hope you ae able
to get there right care you deserve and need take care.....
--------------------------------------------------------------------------------
***Take Care.....Sheryl***
Erma Bombeck said...I May Not Always Understand You, But I'm Always
Willing To Listen.
Erma Bombeck said...If You Can't Stand the Heat.......Turn Off the Stove..
Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted Today 1:01 PM (GMT -7)
ginny said...
Hi Consider,
I just read your last post, and when you described the little red line under
your toe nail, and huge red flag went up!!
I'm a regular on the lupus forum, I also have Fibro. the red lines in your
nails, (and you may find them in your finger nails as well), are called
Splinter Hemmorhages. It is an indication that you have vasculitis or
inflammation of the blood vessels. You need to show these to your doctor.
I'm going to do a little investigating aon your symptoms. they don't sound
like Fibro to me either. For me, fibro pain is a big old body ache, all over.
If I get poked or bump into something, I am in extreme pain. It's like a big
bruise all over my body. I'll get back to you shortly, now for some
investigating.....
ginny
Hi Ginny,
Thank you sooo much. I tried to look them up on the internet when I first
got them, but I couldn't find anything. "Splinter Hemmorhages" sounds like a
perfect name for them... they are so fine, not good-fine, but thin-fine like a
splinter.
It seemed to me that my Polish grandparents had talked about this kind of
thing when I was a child, but just their mention of it as not a good thing was
all I remembered. And no one I knew seemed to have any acquaintance with
the idea.
- I tried to show the doctor, he wouldn't look at my toe, in fact he
interrupted me saying he knew what I was going to say and that I
don't have an infection.
I told him that the red lines had gotten fainter when I had antibiotic,
and when the antibiotic ran out, they got worse again and I got much
sicker.
He said that the placebo effect could work that way.
So when he said I should research fibromyalgia, I felt like he was
insulting me and really everyone with fibromyalgia.
So you have major pain if you bump into something... all over your body?
That is so NOT like what I'm experiencing.
How do you handle the pain?
The major pain in my right thigh (my injured toe is on my left side) seems to
be diminishing as a result of putting Epsom salt towels -- wet and warm -- on
it... and more B12.
Gosh, how totally nice of you to think about this with me. Thank you so
much.
- One thing's for sure, it's really scary when a doctor totally ignores you
and you feel so bad. I keep thinking of people who are less aggressive
than me, and how you hear on the news sometimes about someone
who died in an ER waiting room and no one really noticed...
Okay... I'm straying... but I do feel that it would be good if more people had
kind and helpful people to turn to.
Thank you SO much. : )
--------------------------------------------------------------------------------
www.health-boundaries-bite.com/Fingernails.html
Your fingernails reflect your health --
Learn what warning signs to look for --
Karen Kline
Consider
Registered Member
Date Joined Nov 2004
Total Posts : 20
Posted Today 1:08 PM (GMT -7)
ginny said...
Hi consider,
I've gone on the web and typed in "stiff or hard abdominal muscles". I get a
pile of different diseases and conditions. So it's really important to see a
different doctor. I don't think your current doc is handling your situation
with the care you need.
If you're curious, type the same words into your search engine and see
what comes up. Maybe something will really hit home for you. Are you
having any other symptoms at all? anything abnormal? Sure wish I could
help you more, we all wish for that!
Keep us posted!!
Ginny
Hi Ginny,
There's a thing called FirstConsult. com (I think it's com) that I found and
you can get a thirty day free trial. I think I filled out the application in such a
way that you couldn't really tell I'm not a doctor or nurse.
That site has really great presentation. You might check it out.
I'll go try the words you used.
I'm feeling like the red lines are the key here... they do go away a little when
I soak my foot in Epsom salts... but that's hours a day and it just takes all
my time because I always have to keep resting.
Okay, I'm going to read the rest of these messages then go type in those
words.
Thank you so much ...
Because I'm so sick, I can't drive somewhere else,
and I'm pretty much alone, so I don't have anyone else to drive me...
Do you think the Epsom salts could eventually drive out the infection all
together?
--------------------------------------------------------------------------------
www.health-boundaries-bite.com/Fingernails.html
Your fingernails reflect your health --
Learn what warning signs to look for --
Karen Kline
Hi again consider, I plugged in some info on my search engine for natural
antibitocs and this is what i came up with, Garlic Oregano oil, Grapefruit
seed oil extract, iodine(seaweed), and food: cabbage(which I think you
mentioned before too) cauliflower, brussel sprouts, broccolli, raw garlic and
onions. So I dont know if these will help or not, but you could try? I am sure
those oils are in a health food store like GNC or somewhere like that, if you
can someone to get it for you. Hope this helps some...
--------------------------------------------------------------------------------
***Take Care.....Sheryl***
Erma Bombeck said...I May Not Always Understand You, But I'm Always
Willing To Listen.
Erma Bombeck said...If You Can't Stand the Heat.......Turn Off the Stove..
Consider
Registered Member
Date Joined Nov 2004
Total Posts : 23
Posted Today 3:22 PM (GMT -7)
ginny said...
Hi consider,
I've gone on the web and typed in "stiff or hard abdominal muscles". I get a
pile of different diseases and conditions. So it's really important to see a
different doctor. I don't think your current doc is handling your situation
with the care you need.
If you're curious, type the same words into your search engine and see
what comes up. Maybe something will really hit home for you. Are you
having any other symptoms at all? anything abnormal? Sure wish I could
help you more, we all wish for that!
Keep us posted!!
Ginny
Hi Ginny,
Well I checked out the splinter info, and I don't think it's something that
serious with my heart. It still could be something in my blood, but there
weren't that many pages that were very easy to understand.
The stiff and hard abdominal muscles thing gave me a lot of things to rule
out, and all of them can be ruled out.
One thing that struck me, though, was that tetanus was not mentioned.
While if one reads about tetanus, it talks about tight abdominal muscles. So
there's a bit of a disconnect here.
I should soak my foot again... it takes so much time to soak, and then rest
and then make something to drink with a lot of vitamin C.
I had to move my little oil filled radiator so I could warm the bathroom to
take a shower, and that took so many separate tries... because I couldn't
finish it all at once.
The difference between well and ill is massive.
Thank you again for the suggestions. I really appreciate it.
(I just ate a lot of raw garlic on the suggestion that it acts as a natural
antibiotic.)
: )
--------------------------------------------------------------------------------
www.health-boundaries-bite.com/Fingernails.html
Your fingernails reflect your health --
Learn what warning signs to look for --
Karen Kline
Consider
Registered Member
Date Joined Nov 2004
Total Posts : 23
Posted Today 3:32 PM (GMT -7)
JulieJR said...
Consider, I truly think it's time to quit messing around, get to a hospital,
and find out if your body is filled with infection or not. If those red lines
fade with the help of antibiotics somethings up!! If that infection gets to
your heart or your brain, your dead!!
You need to quit trying to diagnose this yourself, quit jacking around with
this quack of a doctor, and find someone who will help you, even if it
means calling an ambulance.
Think about it! You've already lost all sensation in your toe, what's it
going to take to convince you that something is seriously up? We are not
MD's here.
PLEASE CALL SOMEONE TO TAKE YOU TO THE HOSPITAL WHERE
THEY CAN TO A COMPLETE BLOOD WORKUP! QUIT TALKING TO
THIS DR. YOU'VE BEEN DEALING WITH AND GET TO A DR. WHO
KNOWS WHAT THEY ARE DOING.
Julie
Yes, that seems perfectly reasonable. But as I say, I was sent here by a
doctor who refused to even look at my toe.
- When I went to Whole Life Clinic, October 7, 2004, that's when I had
the horrid contractions in my back and they called an ambulance. The
ER doctor insisted I have a psychological evaluation before he did
anything -- except some pain killer in the IV.
- I specifically asked them to call my traumatic brain injury case manager
to come to the hospital to help me explain because with the pain I was
having a hard time and I was MAJOR irritable. But they totally ignored
me, except the doctor asked if I'd had a head operation.
I haven't lost all feeling in my toe. And I had peripheral neuropathy to start.
What scares me is the muscle tightening and how sick I get when I've only
been up a tiny while.
- Remember I came to this forum specifically because the second ER
doctor said I had fibromyalgia, but he only wrote down, "myalgias"...
and he said said I should research fibromyalgia.
What I think is that this happens to a lot of people who are in poverty,
like me. Especially if they have brain damage and it's harder for them
to explain.
- I even tried taking in a journal of the symptoms the second time I went
to the ER, that time I called the ambulance because I'd had a bad
contraction in my thigh that felt like the contractions in my back... but
they totally pooh-poohed it saying, "You wrote up a long explanation."
I said it wasn't an explanation, it was day by day how I felt and what I
noticed.
Soooo, now I'm eating garlic and soaking my foot in Epsom salts in lieu of
antibiotic.
I'm getting scared, so I think I'll sign off.
--------------------------------------------------------------------------------
www.health-boundaries-bite.com/Fingernails.html
Your fingernails reflect your health --
Learn what warning signs to look for --
Karen Kline
ginny
Veteran Member
Date Joined Feb 2003
Total Posts : 337
Posted Today 4:37 PM (GMT -7)
- As per your last question, "will the epsom salts drive out the infection
eventually?" Consider, I don't think this is an infection you're dealing
with. If it is vasculitis that is making the thin lines under your nails,
then antibiotics are the furthest thing you need to be taking. Vasculitis
is an inflammatory condition that requires anti-inflammatory meds to
solve it. Meds like prednisone(corticosteroids). The fact that you have
these lines on your legs,makes me even more suspicious. You also said
in one of your postings that the pain in your abdomen feels like an
apendics type pain. I agree with JulieJR, get to a hospital. NOW. I
don't like how all this is sounding either. Something serious is going on
and you need help right away. If you are reading this and haven't seen
a doctor or gone to the ER, GO NOW!!!!!! And don't go to the doctor
that you just saw!
We want to hear from you later, so make sure you post okay!!
Prayers are with you,
Ginny
--------------------------------------------------------------------------------
If God brings you to it, He will bring you through it.
Happy moments, praise God.
Difficult moments, seek God.
Quiet moments, worship God.
Painful moments, trust God.
Every moment, thank God.
Consider
Registered Member
Date Joined Nov 2004
Total Posts : 23
Posted Today 5:07 PM (GMT -7)
JulieJR said...
Consider, I truly think it's time to quit messing around, get to a hospital,
and find out if your body is filled with infection or not. If those red lines
fade with the help of antibiotics somethings up!! If that infection gets to
your heart or your brain, your dead!!
You need to quit trying to diagnose this yourself, quit jacking around with
this quack of a doctor, and find someone who will help you, even if it
means calling an ambulance.
Think about it! You've already lost all sensation in your toe, what's it
going to take to convince you that something is seriously up? We are not
MD's here.
PLEASE CALL SOMEONE TO TAKE YOU TO THE HOSPITAL WHERE
THEY CAN TO A COMPLETE BLOOD WORKUP! QUIT TALKING TO
THIS DR. YOU'VE BEEN DEALING WITH AND GET TO A DR. WHO
KNOWS WHAT THEY ARE DOING.
Julie
I sent a copy of this posting and others to St. Vincent Hospital's CEO via
their web site, and then I copied that to various other people like the clinic I
went to, my former therapist, my TBI case manager, the man at Department
of Vocational Rehabilitation that I used to see for help, and many others...
(Jill Ryan, Corrine Romero, Alan Graham, info@wholelifeclinic.org
<info@wholelifeclinic.org>; Velma Root <VRoot@nmqio.sdps.org>;
Traumatic Brain Injury; Carrie Cole, Claire Zimmerman <Czimmerm@aafp.
org>; senator_bingaman@bingaman.senate.gov
<senator_bingaman@bingaman.senate.gov>; Stahl, Cindra <cstahl@hpc.
state.nm.us>; Heidi Hunt <hhunt@motherearthnews.com>
I also copied all of these posts into a web page:
it's not very well done because I'm not very well,
but you can sort of get the idea...
- the idea was that all of them would be in one place so I wouldn't have
to copy them to people one at a time, but then I did copy them to the
CEO because I was afraid he wouldn't bother to go to my web page....
my web page on this is at:
www.health-boundaries-bite.com/My-Doctors-Failed-Me.html
Thanks you guys.
You were so much help.
I'm glad the ER gave me some antibiotic,
but I sure wish they'd given me enough.... or at least touched my toe to see
how it's painful to the touch even though the injury was in mid-August.
--------------------------------------------------------------------------------
www.health-boundaries-bite.com/Fingernails.html
Your fingernails reflect your health --
Learn what warning signs to look for --
Karen Kline
Symbol indicates info
given about fibromyalgia
or another medical
problem
given about fibromyalgia
or another medical
problem
& Answer
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& Answer
Answer
Answer
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Barbed wire indicates
the health boundary of a
doctor or nurse failing me
the health boundary of a
doctor or nurse failing me
Doctors who fail us are a health boundary that bites
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